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(Courtesy of Faith and Love Thrift) A baby born with congenital heart disease and a condition where her esophagus didn’t develop properly has endured 26 crucial surgeries in her life so far. Now a bubbly, bright 4-year-old, she is living her best life.
Dawn Matieschyn, 38, of Langdon, Alberta, opened up to The Epoch Times about her daughter Faith’s resilience, her own grief, and what it took to overcome a heartbreaking start to the life of her daughter.
Faith’s official diagnoses are six-vertebrae “long gap” esophageal atresia, epilepsy, and Shone’s syndrome. However, Dawn and her husband Joel, 41, knew something was wrong early on in the pregnancy. (Courtesy of Faith and Love Thrift) “By eight weeks, I started to feel pains very low in my stomach that closely resembled symptoms you expect much later during pregnancy, and I was puzzled,” Dawn said. “I recall jokingly telling my husband I felt like I was ‘showing much faster,’ and wouldn’t be surprised if I had twins in there.”
At Dawn’s 18-week ultrasound, a specialist broke the news that Faith’s esophagus was not properly attached. Hearing this unexpected news made Dawn devastated.
“I told Joel of the news once I got outside and felt like my world was crashing down; I couldn’t breathe,” Dawn said. “We had miscarried just prior and waited so long to have another child.”
“We never expected this situation to happen; our son was perfectly healthy,” she added, referring to her 9-year-old son, Ryker, “and neither of us have relatives with genetic conditions.”
By 29 weeks, Dawn had developed polyhydramnios and irritable uterus syndrome. In unbearable pain, she was put on two months’ hospital bed rest. (Courtesy of Faith and Love Thrift) Joel, a then-electrician, worked hard for the family in Edmonton while Dawn’s mother-in-law cared for Ryker, lifting her spirits with regular hospital visits.
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Faith was delivered by Caesarean section at Foothills Hospital, Calgary, at 37 weeks and 5 days. Terrified to meet her fragile baby girl for the first time, Dawn recalled: “My heart was pounding and my mind was racing with overwhelming feelings of unknowns and uncertainty.
“I was taken down to see […]
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